Siqueira Valêncio, Luis Felipe2019-09-252019-09-252017-02-2420161983-8034http://hdl.handle.net/20.500.12424/163733"Sickle cell disease is a term that refers to a group of hemoglobinopathies associated with the presence of hemoglobin S. Occurring primarily in black populatin, and affctig mainly the most vulnerable, the homozygous form of the disease, sickle cell anemia, is considered an important public health problem in Brazil. Understanding scientii research as essentil to promote health and improve the quality of life of people with sickle cell disease, the informed consent process should be done to overcome, as far as possible, the vulnerabilitis which people with sickle cell disease are exposed to. The use of recreatinal resources, the transmission of collectie informatin, the protectin provided by patint associatins and the contiuous training of ethics in research by the professionals involved in the agreement are shown as tools for the optiizatin of this process."engCreative Commons Copyright (CC 2.5)Anemiasickle cellInformed consentEthicsresearchBioethicsHealth ethicsCommunity ethicsEducation and ethicsArticle