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Dimensiones bioéticas de la investigación sobre el genoma humano [Dimensions bioethical of the Research on the human genome]
Maccioni, Ricardo B. Mu oz, Juan P. Maccioni, Crist obal
Maccioni, Ricardo B.
Mu oz, Juan P.
Maccioni, Crist obal
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n5_2004.pdf
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"El desciframiento del genoma humano es un paradigma de la ciencia. Adem s de impactar en el conocimiento puede cambiar el curso de la medicina, con un enfoque personalizado y un nfasis en lo preventivo. Como los hallazgos que abren nuevas avenidas de pensamiento, ha despertado la atenci n sobre los riesgos ticos. Se plantea si es tico que le revelen a un individuo que podr a llegar a padecer una enfermedad incurable, lo que impactar a negativamente en su calidad de vida. Sobre qui n tendr acceso a la informaci n gen tica. Desde los inicios de la carrera del genoma humano se plante la necesidad de asegurar la privacidad de la informaci n gen tica. Se hace necesario situar la discusi n en un contexto amplio, pues se crean mitos que es importante aplacar. Es esencial sembrar la confianza promoviendo que la comunidad cient fica, junto con diferentes sectores de la sociedad, realicen un debate abierto sobre los aspectos positivos y negativos de cada nueva tecnolog a que derive del genoma humano" ["The elucidation of the human genome constitutes a major paradigm. Besides its impact on our biological knowledge, the elucidation of the human genome will certainly exert a driving force on both medical research and practice in the future. As a paradigmatic discovery impacting medical research, the human genome has also increased public awareness concerning the risks and ethical problems associated with this advancement. Questions such as whether it is ethical to reveal to a patient that he may be suffering an incurable disease, that this information may negatively impact his quality of life are among the many concerns. From the beginning of the race to elucidate the human genome, it was agreed upon that it is necessary to assure the privacy of an individual genetic information. Therefore, it is critical to focus the discussion in a wide scope and integrative perspective, since myths appear that may produce distortions in the analysis. It is also important to trust that the scientific community, together with other public sectors of the society, will promote a debate associated with the positive and negative aspects of any new technology arising from the discoveries around human genome. It is not the scientific advances that cause bioethical problems, it is the decisions that society takes in terms of how this technology will be used"]
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2004
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With permission of the license/copyright holder