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The Ethical Issues of Biobanks in China
Wang, Yanguang
Wang, Yanguang
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EJAIB112012-7.pdf
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"In 1998 China’s Ministry of Science and Technology established two national human genome research centers. The two national centers, in Beijing and Shanghai, together with many other genetic facilities at the provincial level, have announced the establishment of several special disease-related databases. In particular, Chinese geneticists have constructed the database for genomic polymorphism of the 56 Chinese ethnic groups. Biobanking practices can raise a number of ethical challenges. Those challenges concern the participating individuals’ trust, confidentiality regarding their personal information and the question of who should benefit from commercial gains arising from genomic research, issues of privacy, informed consent, traceability and feedback of participating research subjects and issues of international collaboration"
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2012
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With permission of the license/copyright holder